Now that a couple weeks have passed, things have calmed down and I was able to process those 3 weeks in hospitals — I feel ready to talk about the scariest, most tiresome and blurry 3 weeks of my life.  I’ve been battling with doctors for answers on Rowens GI issues since he was born. Our entire life was dictated by his reflux/vomiting. Packing 20 bibs to go on a trip or 6 just for a few hour outing. I’ve had to buy extra pjs on vacation bc he threw up on 2 pairs in one night. I wore crappy clothes for months and didn’t bother getting ready because I’d…

Being hit with a Down Syndrome diagnosis prenatally or at birth is equally as stressful. Prenatally you have a bit more time to prepare but it doesn’t make finding resources any easier. When I got a positive NIPT for Trisomy 21, I was never given any resources on Down Syndrome, until Rowen was diagnosed at birth. Even then they just throw a bunch of information at you and you’re left to fend for yourself. I never got a CVS/Amnio to confirm diagnosis, but I still did my research to prepare. It helped the news at birth not sting so much but it was still overwhelming. I spent the first 4…

Last Valentine’s Day I had a boy steal my heart. My joy of my first pregnancy was stolen for a moment too. Two weeks prior I had my first OB appointment. I had found out recently I was 4 months pregnant & it was my first prenatal visit. I had tons of testing to catch up on I missed in the first trimester. I had saw my 17 week old baby for the first time the week before. My doctor asked if I wanted to do genetic testing since my parents insurance covered it. My parents drove out to jersey to go to the appointment with me & my mom…